https://www.spg15researchfoundation.org/contact-us daily 0.75 2020-03-09 https://www.spg15researchfoundation.org/take-action daily 0.75 2020-03-16 https://images.squarespace-cdn.com/content/v1/5e43236cbb046375acada1de/1583767440931-V027MVDUDG0VN4RLTZDG/IMG_0247-2.jpg Take Action https://www.spg15researchfoundation.org/home daily 1.0 2024-03-13 https://images.squarespace-cdn.com/content/v1/5e43236cbb046375acada1de/1582590441311-X8UJOYPSOV9J8NH8WDQ8/BlueHands.jpg Home https://images.squarespace-cdn.com/content/v1/5e43236cbb046375acada1de/1582590017539-GEDOAU3QO80CPCDG9LUU/SPG15_3.jpg Home - About the SPG15 Research Foundation The SPG15 Research Foundation promotes awareness, scientific discovery, and education related to this ultra-rare condition. Alison Bushnell, a mother of 2 children with SPG15, started the foundation in June of 2018 and was granted 501(C)3 status in August 2019. In June of 2019, the foundation became a member of the RARE Foundation Alliance via Global Genes, which allows Alison to share her experiences with like-minded advocacy groups. https://images.squarespace-cdn.com/content/v1/5e43236cbb046375acada1de/1582590812342-EV55EOXPST7N0PN3WLTF/SPG_B_1.jpg Home - Funding for the SPG15 Research Foundation will be utilized to: Develop a patient registry in partnership with CoRDS Create a natural history progression study of the disease in partnership with the NIH Other research opportunities Your donation has the ability to change the trajectory of science towards a cure for SPG15.